Happy Easter everyone, hope you are enjoying the spring sunshine. And chocolate…
Since I last wrote, Daniel has been working as hard as ever, and is getting more independent day by day. It’s wonderful to see how his attitude and ambition has changed along with his physical abilities. You might like to see this photo of him & little brother teaming up yesterday to escape our back garden!
Simon and I are still getting used to ‘losing’ Daniel, as he always used to stay where we put him. He’ll now just take himself off to find the bookshelf, or to relax in the garden, or indeed to the bathroom tap to have a drink of water. I can’t tell who is more delighted – Daniel or ourselves!
It’s not just his escapology that has improved, Dan is now able to swim 100m in the big swimming pool without help (although an adult is always poised nearby, as it wouldn’t take much to panic and drown him!).
Last week he did a standardised physio ‘gross motor function’ assessment, and even I could see the vast progress that he has made. We are booked into some strengthening programmes to make the most of his developing muscles, and I can’t wait to see what those sessions will bring.
Last week Daniel developed a new way of getting himself upstairs unsupervised (you can see a short video clip later in this post). This is amazing in itself and is a huge step towards independence - although ironically, it did come on the day when we exchanged contracts to move house to a place where we can build him a downstairs bedroom & bathroom!
Better yet, the fact that Dan worked this new technique out for himself shows that he is learning how to plan movements and to put together his new abilities to get him where he wants to go – a huge change from one year ago when he would sit passively waiting for an adult to help him.
When he got to the top of the stairs, Dan was (rightly) full of pride at his achievement. He turned to me, and asked to write a blog post to tell you how grateful he is to have had the operation. So that’s what we did. We made a video to show his ‘new technique’ of climbing the stairs, and he sat at the computer to write to you all.
The text that follows is all Daniel’s own words, and is his way of expressing how life has changed for him. Enjoy!
I do not want to make a great deal of the new update blog, but I knew you were all waiting for a brand new blog to appear on this website, I just wanted to say:
A massive thank you to you all. Thank You for helping me to do my operation! I have made amazing improvements, and by the help of you things could get very saved!
I have been making loads of improvements. Before writing this blog, I came up with my own technic for climbing upstairs. (see video of one step of my own technic alongside the final line of this paragraph). MVI_3491
Thanks to everyone that has helped in the One Big Step For Daniel Fundraise (and the physios that had helped me in my physio lessons). All of those small differences got put together to make a massive difference to my life.
CONGRATULATIONS TO EVERYONE THAT HAS HELPED, YOU MADE A BIG DIFFERENCE IN MY LIFE, GOODNESS KNOWS WHAT I’LL BE ABLE TO DO IN THE FUTURE WITH YOUR HELP!!!
THANK YOU EVERYONE!